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Updated: Jul 8, 2026
07:13
Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
The internet as a tool for the renal community
Kim Buettner1, Stephen Z Fadem
1American Association of Kidney Patients, Tampa, FL, USA.
Advances in Chronic Kidney Disease
|December 25, 2007
Summary
Personal health records (PHRs) empower patients to manage their health information online. This review highlights reliable web resources for kidney patients and professionals, addressing challenges with online health information accuracy.
Area of Science:
- Health Informatics
- Patient Empowerment
- Digital Health Literacy
Background:
- The internet's impact on healthcare necessitates reliable patient tools.
- Personal Health Records (PHRs) offer secure online health information management.
- The American Association of Kidney Patients (AAKP) developed a PHR for kidney patients.
Purpose of the Study:
- To review credible web resources for kidney patients and renal professionals.
- To address barriers patients face when accessing online health information.
- To guide users in identifying trustworthy health information sources.
Main Methods:
- Review of web resources from major nonprofit organizations in nephrology.
- Evaluation of sites from government health programs and industry leaders.
- Assessment of information accessibility and credibility for patients and professionals.
Main Results:
- Several reputable organizations provide valuable online health resources.
- Key resources include AAKP, National Kidney Foundation, and NIH sites.
- Challenges with online information accuracy and credibility persist.
Conclusions:
- Patients and professionals can benefit from curated, credible online resources.
- Awareness of reliable sources is crucial for informed health management.
- Continued efforts are needed to combat misinformation in digital health spaces.
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