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Published on: April 11, 2025
["Vision through the hands": experience of a project]
Roberta Ventura1, Liana Ventura, Carlos Brandt
1Fundação Altino Ventura, Recife, PE, Brazil. fav@fundacaoaltinoventura.org.br
Insights
This study identified significant ophthalmologic needs in children with multiple disabilities in Pernambuco, Brazil. Many children lacked access to specialized care and required vision correction, highlighting the need for improved services.
Area of Science:
- Ophthalmology
- Public Health
- Pediatrics
Background:
- Multiple disabilities present unique challenges in diagnosis and treatment.
- Access to specialized ophthalmologic care is crucial for children with disabilities.
- The Altino Ventura Foundation initiated a project to address these needs in Pernambuco, Brazil.
Purpose of the Study:
- To investigate the current situation of children with multiple disabilities in Pernambuco.
- To gather data for establishing a specialized diagnosis and treatment center.
- To provide ophthalmologic care and treatment to underserved children.
Main Methods:
- Conducted ophthalmologic examinations and parent interviews with 309 children from disability institutions.
- Evaluated birth and social conditions, social problems, and access to specialized services.
- A multidisciplinary team of 31 professionals facilitated the process.
Main Results:
- 270 children with multiple disabilities were identified; 56.2% received their first ophthalmologic exam.
- 33% had low visual acuity; common diagnoses included refractive errors, strabismus, amblyopia, optic nerve alterations, and cataracts.
- 51.1% reported difficulty accessing ophthalmologic services; only 45.4% attended school.
Conclusions:
- The project provided essential ophthalmologic care and treatment to children with multiple disabilities.
- The initiative generated crucial data on the challenges faced by this population.
- This pioneering project in the region highlighted the need for sustained specialized services.
Purpose:
The Project "Vision through the hands" was performed by the Altino Ventura Foundation, with the purpose of investigating the present child situation with multiple disabilities in the state of Pernambuco, Brazil.
Methods:
Birth and social conditions, social problems, and difficulty in accessing the specialized services were evaluated, aiming to collect relevant data with the goal of posterior implantation of a specialized diagnosis and treatment center. Ophthalmologic care and proper treatment were offered.
Results:
Three hundred and nine children from five reference institutions in disabilities were attended, on six non consecutive days. All cases underwent ophthalmologic examinations and parent interviews. During the waiting time between the ophthalmologic visits and parent interviews the patients performed activities with artists. A multidisciplinary team of 31 professionals was available. According to parent information 83.1% of the patients were considered included in the society and only 45.4% attended school (normal or special). The difficulty to get access to ophthalmologic service was reported by 51.1%. Two hundred and seventy children with multiple disabilities were identified, 154 (56.2%) of whom underwent an ophthalmologic examination for the first time, and 33.0% had low visual acuity (inferior to 20/60 Snellen). The most frequent diagnoses were: refraction error, strabismus, ambliopia, alterations of optic nerve (glaucoma and atrophy), and cataract. Eighty-four glasses were prescribed.
Conclusion:
This project was pioneer in the region, allowing to obtain the information about important problems regarding multiple disabilities, and making possible ophthalmologic care and specialized treatment to the children.
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