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Children's experiences of visiting a seriously ill/injured relative on an adult intensive care unit
Susanne Knutsson1, Ingrid Pramling Samuelsson, Anna-Lena Hellström
1The Sahlgrenska Academy at Göteborg University, Institute of Health and Care Sciences, Göteborg, Sweden. usse.knut@telia.com
Insights
Visiting a critically ill relative in an intensive care unit (ICU) was a positive experience for children, despite initial feelings of uncertainty. The study highlights the importance of involving children in family matters during critical times.
Area of Science:
- Pediatric critical care
- Family-centered care
- Child psychology
Background:
- Limited research exists on children's experiences visiting relatives in adult intensive care units (ICUs).
- Previous focus has been on adult experiences and needs in ICUs, neglecting the child's perspective.
- Understanding children's needs during such visits is crucial for providing appropriate support.
Purpose of the Study:
- To explore and understand children's subjective experiences and needs when visiting a seriously ill or injured relative in an adult intensive care unit.
- To provide insights into how these visits impact children emotionally and psychologically.
- To inform healthcare practices regarding child visitation in critical care settings.
Main Methods:
- A qualitative study involving 28 children (aged 4-17 years) who had visited an adult relative in an ICU.
- Interviews were conducted three months post-visit to gather detailed accounts of their experiences.
- A hermeneutic approach was employed for the interpretation and analysis of the interview data.
Main Results:
- Four key themes emerged: 'It meant waiting,' 'It was strange,' 'It was white,' and 'It was good.'
- Waiting induced uncertainty and tension, while the ICU environment was perceived as strange, white, and gloomy.
- Despite initial apprehension, the visit was ultimately viewed positively ('It was good') as it allowed connection with the relative, leading to relief and joy.
Conclusions:
- Children's experiences suggest that involving them in family matters, even during critical illness, is beneficial.
- Visits to the ICU did not appear to be frightening for the children; rather, they facilitated emotional release.
- Findings support theories emphasizing the importance of child involvement and participation in family situations.
Aim:
This paper is a report of a study of children's experiences of visiting a seriously ill/injured relative in an intensive care unit.
Background:
Little attention has been paid to children's experiences and needs when visiting a relative being cared for at a high technological adult intensive care unit. Instead, the focus has been on adult's experiences and needs.
Method:
In 2004, 28 children (14 girls, 14 boys) aged 4-17 years who had visited an adult relative were interviewed 3 months after the visit. A hermeneutic approach was used when interpreting and analysing the text.
Findings:
Four themes were generated from the data: It meant waiting, It was strange, It was white and It was good. Waiting was experienced as difficult, increasing the feeling of uncertainty, exclusion and separation, which in turn led to tension and concern. 'It was strange' was perceived as unfamiliar but also with interest and curiosity. The experience of the intensive care unit was that it was white. Everything in the patient's room was experienced as white and gloomy. It lacked joy. 'It was good' was stated about the outcome of the visit because through this they were given the opportunity to meet and see the relative by themselves. This evoked feelings of relief and joy. The visit did not seem to frighten the child; instead it generated feelings of release and relief.
Conclusion:
Children's experiences of visiting an adult intensive care unit seem to support theories that emphasize the involvement and participation of children in family matters.
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