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Development and validation of Patient Reported Impact of Spasticity Measure (PRISM).

Karon F Cook¹, Cayla R Teal, Joan C Engebretson

¹Department of Veterans Affairs Measurement Excellence and Training Resource Information Center, Houston,TX, USA. karonc2@u.washington.edu

Journal of Rehabilitation Research and Development

|February 6, 2008

Summary

This study developed the Patient Reported Impact of Spasticity Measure (PRISM) to assess spasticity effects on quality of life for individuals with spinal cord injury (SCI). The PRISM effectively measures the impact of spasticity, including positive effects, in veterans with SCI.

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Area of Science:

Rehabilitation Medicine
Neuroscience
Patient-Reported Outcomes

Background:

Spasticity is a common symptom following spinal cord injury (SCI).
Existing spasticity assessment tools do not fully capture the lived experiences of individuals with SCI.
A validated patient-reported measure is needed to assess the impact of spasticity on quality of life.

Purpose of the Study:

To develop and validate a patient-reported instrument to measure the impact of spasticity on quality of life in persons with SCI.
To create a comprehensive tool that includes both negative and positive effects of spasticity.

Main Methods:

A developmental form of the Patient Reported Impact of Spasticity Measure (PRISM) was created based on 24 semistructured interviews.
The developmental PRISM was administered to 180 individuals with SCI across five study sites.
Factor analysis was used to develop subscales, and reliability and validity were assessed.

Main Results:

Seven subscales were developed for the PRISM.
One subscale specifically addresses the positive effects of spasticity.
Reliability and validity assessments confirmed the PRISM subscale scores effectively measure spasticity's impact in veterans with SCI.

Conclusions:

The Patient Reported Impact of Spasticity Measure (PRISM) is a reliable and valid instrument for assessing the impact of spasticity on quality of life in veterans with SCI.
The PRISM captures a comprehensive range of spasticity effects, including previously unrecognized positive impacts.
This tool enhances the understanding and management of spasticity in the SCI population.