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Like a shadow--on becoming a stroke victim's relative
Catarina Wallengren1, Febe Friberg, Kerstin Segesten
1School of Health and Sciences, University College of Borås, Borås, Sweden. catarina.wallengren@hb.se
First-time relatives of stroke survivors experience chaos but find strength to restore order. This turning point signifies their journey toward stability, highlighting the need for caregiver support.
Area of Science:
- Neurology
- Gerontology
- Psychology
Background:
- Stroke is a leading cause of death and disability, with increasing prevalence due to aging populations.
- The impact of stroke extends to family members, yet their experiences are under-researched.
- Few studies explore the transition of relatives becoming caregivers after a stroke event.
Purpose of the Study:
- To explore the lived experiences of relatives of first-time stroke survivors.
- To understand the meaning of becoming a relative to a stroke victim during the initial weeks post-stroke.
- To identify the transition process from informal relative to informal carer.
Main Methods:
- Phenomenological hermeneutic method was employed.
- Semi-structured interviews were conducted with sixteen relatives of stroke victims.
- Experiences were analyzed from the stroke onset through the initial weeks.
Main Results:
- Relatives described experiencing 'chaos' and actively 'searching for order'.
- A 'turning point' was identified when relatives recognized their strength and sought to restore stability.
- This turning point marks the beginning of relatives actively managing the chaotic situation.
Conclusions:
- Caregivers should be more attentive to relatives' needs during the post-stroke period.
- Pedagogical interventions can be effective when relatives begin to mobilize themselves.
- Supporting relatives is crucial for restoring order and stability in their lives.
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