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Ethical issues in sharing epidemiologic data.

C J Hogue

    Journal of Clinical Epidemiology
    |January 1, 1991
    PubMed
    Summary
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    Researchers are increasingly urged to share epidemiological data due to large datasets and advanced computing. This paper explores the ethics, necessity, and methods of data sharing in research.

    Area of Science:

    • Epidemiology
    • Data Science
    • Research Ethics

    Background:

    • The digital age presents unprecedented opportunities for data linkage and meta-analysis.
    • Growing professional concern highlights the need for data sharing among researchers.
    • The complexity and importance of data sharing have become evident as scientific groups address the issue.

    Purpose of the Study:

    • To summarize recent developments in the ethics of data sharing across various scientific disciplines.
    • To discuss the rationale, scope, participants, timing, and methodology of data sharing in epidemiology.

    Main Methods:

    • Literature review of recent developments in data sharing ethics.
    • Synthesis of discussions on the 'why, what, who, when, and how' of data sharing.
    Keywords:
    Bioethics and Professional EthicsBiomedical and Behavioral Research

    Related Experiment Videos

  • Exploration of data sharing practices in statistics, sociology, psychology, and epidemiology.

    • Main Results:

    • Recent ethical considerations in data sharing have been identified.
    • Key questions regarding the implementation of data sharing protocols are addressed.
    • A framework for understanding and conducting data sharing in epidemiological research is presented.

    Conclusions:

    • Data sharing is crucial for advancing epidemiological research and meta-analysis.
    • Ethical guidelines and practical considerations for data sharing are essential.
    • This paper provides a comprehensive overview to guide researchers in data sharing practices.