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Updated: Jul 7, 2026

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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
The influence of experiential knowledge on prenatal screening and testing decisions
Holly Etchegary1, Beth Potter, Heather Howley
1Epidemiology and Community Medicine, University of Ottawa, Ottawa, Ontario, Canada. hetchega@uottawa.ca
Genetic Testing
|March 1, 2008
Summary
Women
Area of Science:
- Reproductive Health
- Medical Decision Making
- Genetics Counseling
Background:
- Limited research exists on decision-making processes in prenatal screening and testing.
- Experiential knowledge significantly influences choices regarding prenatal diagnostics.
- Understanding these influences is crucial for effective patient counseling.
Purpose of the Study:
- To explore how women make decisions about prenatal screening and testing.
- To identify the role of experiential knowledge in these decisions.
- To inform prenatal genetic counseling practices.
Main Methods:
- Conducted 38 semistructured interviews with women.
- Employed qualitative data analysis to interpret findings.
- Focused on understanding the nuances of decision-making processes.
Main Results:
- Identified two key types of experiential knowledge: empathetic and embodied.
- These forms of knowledge significantly impacted women's perceptions of test value.
- Experiential knowledge influenced acceptance or rejection of screening and testing offers.
Conclusions:
- Experiential knowledge, both empathetic and embodied, is pivotal in prenatal testing decisions.
- Prenatal genetic counseling should incorporate discussions of clients' experiential knowledge.
- Integrating experiential insights can enhance patient-centered care in reproductive genetics.
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