Development, testing, and national evaluation of a pediatric Patient-Family-Centered Care benchmarking survey

Sally Carmen1, Steve Teal, Cathie E Guzzetta

  • 1Additional Kare for Kids, Inc. carmen.sally@yahoo.com

Insights

This study validates the Patient-Family-Centered Care Survey, showing it reliably measures progress in pediatric institutions. The survey helps assess patient-centered care integration and outcomes.

Area of Science:

  • Healthcare Quality
  • Pediatric Healthcare
  • Patient Experience Measurement

Background:

  • Integrating patient-family-centered care is crucial in pediatric settings.
  • Existing methods for measuring this integration may be limited.
  • Standardized tools are needed to benchmark progress.

Purpose of the Study:

  • To establish the reliability and construct validity of the Patient-Family-Centered Care Survey.
  • To provide a tool for measuring and benchmarking patient-family-centered care integration in pediatric institutions.
  • To support the evaluation of progress in patient-centered care over time.

Main Methods:

  • Developed the Patient-Family-Centered Care Survey in collaboration with FKP Architects.
  • Assessed survey reliability using Cronbach's alpha (ranging from .76 to .94).
  • Evaluated construct validity to ensure the survey measures the intended concept.

Main Results:

  • The Patient-Family-Centered Care Survey demonstrated strong reliability (Cronbach's alpha .76-.94).
  • Evidence supports the construct validity of the survey.
  • The survey is suitable for measuring patient-family-centered care in pediatric settings.

Conclusions:

  • The Patient-Family-Centered Care Survey is a reliable and valid instrument.
  • This tool can effectively measure and benchmark patient-family-centered care integration.
  • The survey can be used alongside outcome measures for comprehensive assessment.

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