Mothers' perceptions of parenting a child with spina bifida

Mothers of 19 children (mean age = 8.8 years) with spina bifida were interviewed about medical and psychological services available, school placement and restrictions experienced by their children in school and social activities. Mothers also rated their own confidence to care for the child, perceived social support and difficulties experienced by the family. In addition, a measure of the child's disability status was derived. Mothers whose child scored higher in terms of disability reported greater everyday difficulties. In addition, mothers' confidence was related to perceived social support. Mothers reported regular use of medical services but little reliance on specialized nursing or psychological services.