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Implementing a service users' framework for cancer care in primary care: an action research study
Scott A Murray1, Kirsty Boyd, Christine Campbell
1Primary Palliative Care Research Group, School of Clinical Sciences and Community Health-General Practice, University of Edinburgh, Edinburgh EH8 9DX, UK. scott.murray@ed.ac.uk
Family Practice
|March 13, 2008
Summary
A new framework for proactive cancer care was successfully validated in primary care settings. Flexible adoption improved continuity, teamwork, and support for patients and their family carers.
Area of Science:
- Oncology
- Primary Care
- Health Services Research
Background:
- A service-user designed framework for proactive cancer care in the community was previously developed.
- This study aimed to validate the framework in real-world clinical practice.
Purpose of the Study:
- To evaluate the implementation and impact of a novel proactive cancer care framework in general practices.
- To assess the framework's effectiveness in improving care continuity, teamwork, and patient/carer support.
Main Methods:
- Action research approach involving five diverse general practices in South Scotland.
- Evaluation through in-depth interviews with 18 patients/carers and 49 health professionals.
- Participant observation and ongoing dialogue with practices, research team, and user groups.
Main Results:
- Practices customized and implemented the framework, utilizing cancer registers for improved communication.
- Proactive care was initiated earlier in the cancer trajectory, not just in advanced stages.
- Patients, carers, and professionals reported enhanced continuity of care, teamwork, and support.
Conclusions:
- Flexible adoption of the framework can improve proactive, personalized cancer care in primary care.
- The framework's success depends on adapting to practice-specific settings, resources, and experiences.
- Key characteristics of good care, as perceived by patients and carers, were embraced throughout the illness trajectory.
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