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Can the death of a child be good?
1School of Nursing, Marshall University, Huntington, WV 25755, USA. welchs@marshall.edu
Insights
Annually, 54,000 children die, highlighting the need for better pediatric palliative and end-of-life care. Analyzing the concept of a "good death" can guide nurses in providing evidence-based, developmentally appropriate care for dying children and their families.
Area of Science:
- Pediatric Nursing
- Palliative Care
- End-of-Life Care
Background:
- Despite medical advances, 54,000 children die annually from acute and chronic illnesses.
- There is a growing demand for enhanced palliative and end-of-life care services for pediatric patients.
- The concept of a "good death," widely discussed in adult hospice care, requires specific consideration in pediatrics.
Purpose of the Study:
- To analyze the concept of a "good death" within the context of pediatric care.
- To provide a framework for pediatric nurses to understand and implement end-of-life care.
- To facilitate collaboration between clinical and research nursing to develop evidence-based care.
Main Methods:
- Conceptual analysis of "good death" in pediatric end-of-life care.
- Literature review on adult hospice and pediatric palliative care concepts.
- Framework development for nursing practice and research.
Main Results:
- The concept of a "good death" for children needs adaptation from adult models.
- A framework is proposed to guide nurses in understanding and applying "good death" principles.
- Emphasis on evidence-based, developmentally appropriate care is crucial.
Conclusions:
- Understanding "good death" is essential for pediatric nurses caring for dying children.
- A collaborative approach between clinical practice and research can improve pediatric end-of-life care.
- Further development and implementation of this framework are recommended to enhance care quality.
Abstract:
Fifty-four thousand children die each year despite the advances in care for children with acute and chronic illnesses. Demands for improved palliative and end-of-life care for children exist. Good death is a concept frequently used in the adult hospice movement. However, how can the death of a child be good? Analysis of good death can assist pediatric nurses to understand the concept and provide a framework for nurses in the clinical and research arenas to work together to develop and provide evidence-based, developmentally appropriate care for dying children and their families.
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