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Terminology: the historical perspective, evolution and current usage--room for confusion?
1St Columba's Hospice Chair of Palliative Medicine, University of Edinburgh, Edinburgh Cancer Research Centre, Western General Hospital, Crewe Road South, Edinburgh, UK. marie.fallon@ed.ac.uk
Summary
Modern palliative care, originating in 1967, has evolved beyond hospice to include hospital teams. Challenges remain in consistent terminology and addressing significant gaps in patient care.
Area of Science:
- Medical Specialties
- Healthcare Delivery
- Clinical Research
Background:
- Modern palliative care originated with St Christopher's Hospice in 1967, initially termed 'terminal care'.
- This model influenced the development of multidisciplinary clinical care, teaching, and research in palliative medicine.
- The establishment of hospital Palliative Care Teams and the formalization of Palliative Medicine as a subspecialty marked further evolution.
Purpose of the Study:
- To trace the historical development and evolution of palliative care services.
- To identify the challenges in terminology and evidence base within the expanding field of palliative care.
- To highlight the existing gaps in patient care within the palliative care continuum.
Main Methods:
- Historical review of palliative care development.
- Analysis of terminology evolution and consistency.
- Identification of research and clinical practice gaps.
Main Results:
- Palliative care has expanded significantly beyond its hospice origins, with increasing non-hospice services.
- Inconsistent terminology and a slowly developing evidence base present ongoing challenges.
- Substantial gaps in patient care persist despite the field's expansion.
Conclusions:
- Palliative care has evolved into a recognized medical subspecialty with a growing evidence base.
- Establishing clear and consistent terminology is crucial for advancing palliative care.
- Addressing identified gaps in patient care is essential for improving outcomes in palliative medicine.
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