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Paediatric palliative care: coming of age in oncology?
Renée McCulloch1, Maggie Comac, Finella Craig
1Paediatric Palliative Care Team, Great Ormond Street Hospital for Children, Great Ormond Street, London. Mcculr@gosh.nhs.uk
Insights
Pediatric palliative care integrates pediatrician expertise with palliative care specialization for children with incurable cancer. This review highlights unique challenges and advances in pediatric palliative oncology services.
Area of Science:
- Pediatric Oncology
- Palliative Care Medicine
- Child Health Services Research
Background:
- Palliative care in children is an emerging subspecialty of pediatrics.
- Effective pediatric palliative care requires a combination of pediatric and palliative care expertise.
- Paediatricians may lack advanced palliative care knowledge, while palliative care specialists may be unfamiliar with pediatric complexities.
Purpose of the Study:
- To review recent literature on advances in pediatric palliative care services.
- To discuss the development of services for children and young people with incurable cancer.
- To identify key differences between pediatric and adult palliative care.
Main Methods:
- Literature review of recent publications.
- Analysis of advances in pediatric palliative care services.
- Discussion of challenges in pediatric palliative oncology.
Main Results:
- Pediatric palliative care necessitates specialized knowledge beyond general pediatrics or adult palliative care.
- Key differences exist between pediatric and adult palliative care approaches.
- Barriers to providing effective palliation and conducting research in pediatric cancer exist.
Conclusions:
- Pediatric palliative care is a distinct and essential subspecialty.
- Further development of pediatric palliative care services is needed.
- Addressing barriers is crucial for improving care and research in pediatric palliative oncology.
Abstract:
Palliative care in children has been emerging as a clinical subspecialty of paediatrics for many years. It requires the knowledge and experience of a paediatrician, combined with the skills of a palliative care specialist. Both are essential, as a paediatrician may not have advanced knowledge of palliative care and a palliative care specialist is unlikely to be familiar with the complexity of working with families where the child is the patient. This paper reviews recent literature and discusses advances in the development of palliative care services for children and young people with incurable cancer. It highlights key areas where paediatric palliative care differs from that of adults and outlines the barriers to providing palliation and conducting evidence-based research in children and young people dying from cancer.
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