Costing juvenile idiopathic arthritis: examining patient-based costs during the first year after diagnosis

J Thornton1, M Lunt, D M Ashcroft

  • 1Arthritis Research Campaign Epidemiology Unit, Division of Epidemiology and Health Sciences, University of Manchester, Manchester, UK. Judith.thornton@cmmc.nhs.uk

Insights

The first year of treating childhood inflammatory arthritis, juvenile idiopathic arthritis (JIA), costs an average of £1649 per child in the UK. Costs vary significantly by JIA subtype and individual patient needs.

Area of Science:

  • Pediatric Rheumatology
  • Health Economics
  • Clinical Research

Background:

  • Limited data exist on the treatment costs for pediatric inflammatory arthritis, specifically juvenile idiopathic arthritis (JIA).
  • Understanding these costs is crucial for healthcare planning and economic impact assessment.

Purpose of the Study:

  • To determine patient-based costs for treating children with JIA in the UK during the first year post-diagnosis.
  • To analyze costs from a secondary healthcare payer perspective.

Main Methods:

  • Utilized data from the ongoing Childhood Arthritis Prospective Study (CAPS) involving children newly diagnosed with inflammatory arthritis (
  • Collected health service resource use data at diagnosis, 6 months, and 1 year.
  • Applied reference unit costs to calculate the first-year treatment cost per child.

Main Results:

  • A total of 297 children completed the 12-month follow-up.
  • The mean annual total cost per child was £1649 (SD £1093, range £401-£6967).
  • Appointments with pediatric rheumatologists represented the highest cost component; costs were highest for enthesitis-related, systemic JIA, or extended oligoarthritis subtypes.

Conclusions:

  • Children with JIA consume substantial and highly variable health service resources in the first year post-diagnosis.
  • Individual patient costs are essential for accurate cost recoupment and economic impact assessments of interventions.
Abstract

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