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Costing juvenile idiopathic arthritis: examining patient-based costs during the first year after diagnosis
J Thornton1, M Lunt, D M Ashcroft
1Arthritis Research Campaign Epidemiology Unit, Division of Epidemiology and Health Sciences, University of Manchester, Manchester, UK. Judith.thornton@cmmc.nhs.uk
Insights
The first year of treating childhood inflammatory arthritis, juvenile idiopathic arthritis (JIA), costs an average of £1649 per child in the UK. Costs vary significantly by JIA subtype and individual patient needs.
Area of Science:
- Pediatric Rheumatology
- Health Economics
- Clinical Research
Background:
- Limited data exist on the treatment costs for pediatric inflammatory arthritis, specifically juvenile idiopathic arthritis (JIA).
- Understanding these costs is crucial for healthcare planning and economic impact assessment.
Purpose of the Study:
- To determine patient-based costs for treating children with JIA in the UK during the first year post-diagnosis.
- To analyze costs from a secondary healthcare payer perspective.
Main Methods:
- Utilized data from the ongoing Childhood Arthritis Prospective Study (CAPS) involving children newly diagnosed with inflammatory arthritis (
- Collected health service resource use data at diagnosis, 6 months, and 1 year.
- Applied reference unit costs to calculate the first-year treatment cost per child.
Main Results:
- A total of 297 children completed the 12-month follow-up.
- The mean annual total cost per child was £1649 (SD £1093, range £401-£6967).
- Appointments with pediatric rheumatologists represented the highest cost component; costs were highest for enthesitis-related, systemic JIA, or extended oligoarthritis subtypes.
Conclusions:
- Children with JIA consume substantial and highly variable health service resources in the first year post-diagnosis.
- Individual patient costs are essential for accurate cost recoupment and economic impact assessments of interventions.
Objectives:
There are few data on the treatment patterns and associated cost of treating children with inflammatory arthritis including juvenile idiopathic arthritis (JIA), in the short or long term. The aim of this study was to obtain patient-based costs for treating children with JIA in the UK, in the first year from diagnosis and from the secondary health care payer perspective.
Methods:
The Childhood Arthritis Prospective Study (CAPS) is an ongoing longitudinal study recruiting children with inflammatory arthritis from four UK hospital centres. Included children are newly diagnosed,
Results:
A total of 297 children attended a 12-month follow-up visit. The mean annual total cost per child was pound1649 (s.d. pound1093, range pound401- pound6967). The highest cost component was for appointments with paediatric rheumatologists. Mean total costs were highest for children with enthesitis-related, systemic JIA or extended oligoarthritis.
Conclusions:
In the first 12 months after diagnosis, children with all JIA disease subtypes consume large, but highly variable quantities of health service resources. Individual patient costs are required to reflect the wide variation in cost between patients and allow appropriate recouping of costs for contracted services and for assessing the economic impact of interventions.
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