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The use of a psychological intervention to increase adherence during factor administration in a child with
1Penn State Harrisburg, USA. smp306@psu.edu
Insights
Psychological interventions like distraction and positive reinforcement improve treatment adherence in children with haemophilia. These methods help manage uncooperative behavior during factor replacement therapy, ensuring consistent care.
Area of Science:
- Pediatric Hematology
- Behavioral Psychology
Background:
- Factor replacement therapy is crucial for children with hemophilia, enabling near-normal lives.
- Intravenous infusions for hemophilia treatment can be painful, leading to child non-adherence.
- Parent-reported uncooperative behavior during prophylaxis is a major barrier to treatment adherence.
Observation:
- This study illustrates psychological interventions to enhance adherence during factor administration.
- Single-case methodology was employed to assess intervention effectiveness.
- Interventions included counterconditioning, distraction, and positive differential reinforcement.
Findings:
- Psychological interventions significantly increased treatment adherence over several months.
- The methods effectively managed uncooperative behaviors during factor infusions.
- Caregivers and providers can successfully implement these techniques.
Implications:
- Psychological interventions offer a viable strategy to improve hemophilia treatment adherence in children.
- These methods can reduce the burden of treatment on children and families.
- Enhanced adherence supports better long-term health outcomes for pediatric hemophilia patients.
Abstract:
While factor replacement treatments allow children with haemophilia to lead near normal lives, these treatments can be difficult to administer, especially to younger children. The intervenous infusions required by these treatments can be painful and result in children attempting to avoid treatment by exhibiting a range of inappropriate behaviours. Their children's uncooperative behaviour during prophylaxis was cited by parents as a significant barrier to treatment adherence. This study provides a case illustration of the use of psychological interventions to increase adherence during factor administration. Single-case methodology was used to demonstrate the effectiveness of the psychological interventions including counterconditioning, distraction, and positive differential reinforcement. The intervention resulted in increased adherence across several months of intervention. Psychological interventions can be effectively used by caregivers and care providers to increase adherence in the treatment of haemophilia.
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