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Against the inalienable right to withdraw from research.

Eric Chwang1

  • 1Department of Philosophy, University of Colorado at Boulder, Boulder, Colorado 80309-0232, USA. chwang@colorado.edu

Bioethics
|June 14, 2008
PubMed
Summary

Research participants may sometimes waive their right to withdraw from studies. This paper argues that the right to withdraw from research is not always inalienable, challenging the consensus view.

Area of Science:

  • Bioethics
  • Research Ethics
  • Philosophy of Medicine

Background:

  • The right to withdraw is a cornerstone of ethical research involving human subjects.
  • Current consensus generally holds this right to be inalienable.

Purpose of the Study:

  • To challenge the prevailing view that the right to withdraw from research is always inalienable.
  • To argue that research participants are sometimes morally permitted to waive this right.

Main Methods:

  • Philosophical argumentation.
  • Analysis of the nature of rights and their alienability.
  • Examination of specific characteristics of the right to withdraw.
  • Comparison with justifications for other inalienable rights.

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Main Results:

  • Rights are generally alienable, and paternalistic reasons for inalienability are often untenable.
  • Specific concerns regarding the right to withdraw (exploitation, bodily access, irreversibility) do not necessitate its inalienability.
  • Justifications for other inalienable rights do not apply to the right to withdraw from research.

Conclusions:

  • The right to withdraw from research is sometimes alienable.
  • Research participants may be morally permitted to waive their right to withdraw under certain circumstances.