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Published on: September 19, 2019
When disclosing a serious diagnosis to a minor conflicts with family values
Vidya Bhushan Gupta1, Jennifer Willert, Mark Pian
1Clinical Pediatrics, New York Medical College, New York, USA.
Insights
Pediatric cancer patients have a right to know their diagnosis. A father requested his son not be told about his acute myelogenous leukemia, but the oncologist insisted on truthful disclosure.
Area of Science:
- Pediatric Oncology
- Medical Ethics
- Childhood Cancer
Background:
- A case involving an 11-year-old Asian-Indian boy diagnosed with acute myelogenous leukemia.
- The parents were to be informed about the diagnosis, prognosis, and treatment plan.
- The physician intended to involve the child in discussions regarding his condition.
Purpose of the Study:
- To explore the ethical considerations of disclosing a cancer diagnosis to a pediatric patient.
- To examine the conflict between parental wishes and a physician's duty of disclosure.
- To highlight the importance of open communication in pediatric oncology.
Main Methods:
- Case report detailing a clinical encounter.
- Discussion of ethical principles in pediatric patient care.
- Analysis of the physician-oncologist's response to parental request.
Main Results:
- A conflict arose between the father's request to withhold the leukemia diagnosis from his son and the oncologist's ethical obligation for truthful disclosure.
- The oncologist maintained that the child should be informed about his condition in an open and honest manner.
Conclusions:
- Physicians have a responsibility to disclose diagnoses truthfully to pediatric patients, respecting their right to information.
- Balancing parental autonomy with the child's right to know is crucial in pediatric cancer care.
- Open communication fosters trust and empowers pediatric patients in their treatment journey.
Abstract:
An 11-year old Asian-Indian boy was recently discovered to have acute myelogenous leukemia. The pediatric hematologist-oncologist arranged a meeting to inform the parents about the diagnosis, prognosis and treatment. The physician planned to include the child in this process. However, the child's father, a computer programmer, made a request that his son should not be informed about the diagnosis of leukemia. The father asked that his son should be told that he has a severe infection and will require intensive treatment. The oncologist then informed the father that, as a physician, she has the responsibility to truthfully disclose the diagnosis to a patient, and she insisted on informing the child about the leukemia in an open and truthful manner.
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