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Allocation of family responsibility for illness management in pediatric HIV

Sylvie Naar-King1, Grace Montepiedra, Sharon Nichols

  • 1Carman and Ann Adams Department of Pediatrics, Wayne State University, USA. snaarkin@med.wayne.edu

Journal of Pediatric Psychology
|July 1, 2008
PubMed

Insights

Caregivers often shift HIV treatment responsibility to adolescents, but this transition can be challenging, impacting medication adherence. Supporting this shift is crucial for better health outcomes in pediatric HIV.

Area of Science:

  • Pediatric HIV Management
  • Adolescent Health
  • Family Dynamics in Chronic Illness

Background:

  • Perinatal HIV infection presents unique challenges for pediatric patients and their families.
  • Effective illness management, particularly medication adherence, is critical for long-term health outcomes.
  • Understanding the roles and responsibilities within families is key to optimizing care.

Purpose of the Study:

  • To describe how responsibility for managing illness is allocated within families of children and adolescents with perinatal HIV.
  • To explore the relationship between the transition of responsibility and medication adherence.

Main Methods:

  • A substudy of Pediatric AIDS Clinical Trials Group protocol 219c involved 123 youth (ages 8-18) and their caregivers.
  • Data were collected using questionnaires assessing family responsibility and medication adherence.

Main Results:

  • Approximately 25% of youth reported full responsibility for their medications.
  • Older youth and their caregivers reported a greater degree of responsibility for medication tasks.
  • Caregiver-reported youth responsibility for medications correlated with better adherence, while age itself did not.

Conclusions:

  • Caregivers tend to transfer HIV care responsibilities to older adolescents.
  • This transition is not always successful, potentially leading to suboptimal medication adherence.
  • Interventions aimed at supporting a successful transition of care responsibilities may enhance adherence and improve health outcomes for youth with HIV.
Abstract

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