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Rising expectations: access to biomedical information.

D A B Lindberg¹, B L Humphreys

¹National Library of Medicine, National Institutes of Health, Bethesda, Maryland, USA. lindberg@nlm.nih.gov

Yearbook of Medical Informatics

|July 1, 2008

Summary

This summary is machine-generated.

Public access to electronic biomedical information has grown significantly, driven by the internet and informatics advances. Ensuring continued access to this vital health data for future generations remains a key challenge.

Keywords:

Access to information clinical trials consumer health information digital libraries genetic databases

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Area of Science:

Biomedical Informatics
Health Information Science
Digital Health

Background:

The U.S. National Library of Medicine has played a key role in expanding public access to electronic biomedical information over the past two decades.
The growth of the internet and World Wide Web has significantly increased user expectations for accessing health information.

Observation:

A wide array of web-accessible resources, including genomic data, biomedical literature, consumer health information, clinical trials data, and medical images, has become available.
Informatics advancements have simplified access, reduced costs, and improved the usability of electronic health information.

Findings:

Publicly available electronic biomedical information has increased dramatically over the last twenty years.
Cost reductions and improved access facilitated inter-organizational collaborations for maintaining large international information resources.
The benefits of free access have spurred public policies to further enhance information availability.

Implications:

The continued rapid expansion of accessible electronic biomedical information presents both opportunities and challenges.
Ensuring uninterrupted access during emergencies and preserving digital resources for the future are critical considerations.