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Parental understanding of neonatal congenital heart disease

Ismee A Williams1, Roxana Shaw, Charles S Kleinman

  • 1Department of Pediatrics, Division of Pediatric Cardiology and the Center for Prenatal Pediatrics, Columbia University College of Physicians and Surgeons, Morgan Stanley Children's Hospital of New York, New York, 10032, USA. iib6@columbia.edu

Pediatric Cardiology
|July 2, 2008
PubMed

Insights

Prenatal diagnosis significantly improves parental understanding of congenital heart disease (CHD) in newborns. However, overall parental knowledge about CHD remains insufficient, highlighting a need for better educational strategies.

Area of Science:

  • Neonatal care
  • Pediatric cardiology
  • Maternal-fetal medicine

Background:

  • Congenital heart disease (CHD) affects newborns, necessitating comprehensive parental understanding for optimal care.
  • Parental comprehension of CHD is crucial for managing the condition and ensuring appropriate follow-up.
  • Evaluating the impact of prenatal diagnosis on parental knowledge is vital for improving care pathways.

Purpose of the Study:

  • To assess how prenatal diagnosis influences parental understanding of congenital heart disease (CHD) in newborns.
  • To compare the knowledge levels of parents who received a prenatal diagnosis versus those who received a postnatal diagnosis.
  • To identify factors influencing parental understanding of CHD.

Main Methods:

  • A questionnaire assessed parental understanding of CHD, including lesion details, surgical repair, and follow-up.
  • A total understanding score (0-10) was derived from subscores related to physician communication, CHD specifics, surgery, follow-up, and reproductive risks.
  • Multivariate regression analysis compared scores between prenatal and postnatal diagnosis groups, controlling for maternal education.

Main Results:

  • Fifty families participated, with 26 reporting a prenatal diagnosis.
  • The mean overall understanding score was 6.3 out of 10.
  • Prenatal diagnosis and maternal education were independently associated with higher parental understanding scores (p < 0.01).

Conclusions:

  • Prenatal diagnosis is associated with increased parental understanding of neonatal congenital heart disease (CHD).
  • Despite improvements, parental understanding of CHD remains suboptimal, indicating a need for enhanced educational interventions.
  • Both prenatal diagnosis and maternal education play independent roles in shaping parental knowledge of CHD.
Abstract

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