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Psychosocial factors in living organ donation: clinical and ethical challenges
Sheila G Jowsey1, Terry D Schneekloth
1Department of Psychiatry and Psychology, Mayo Clinic, Rochester, MN 55905, USA. jowsey.sheila@mayo.edu
Abstract:
Living donor surgery has come to the forefront of public attention because increasing numbers of potential donors respond to the organ shortage. Because of several factors including decreased morbidity from donor surgery, online resources appealing for organs, and increased publicity about donation, new populations of unrelated donors are seeking evaluation for donor surgery. However, concern about potential coercion of vulnerable individuals, the potential for adverse psychosocial outcomes, and recent reports of donor deaths have reinvigorated discussion within the medical community about how best to assess donors. Research on the long-term quality of life outcomes for donors suggests that most donors are satisfied with their decision to donate. Small single-center studies on psychosocial outcomes have reported psychiatric sequelae after donor surgery. Little is known about the psychosocial outcomes for donors who are psychosocially excluded from donating. A multidisciplinary team approach, including social work and psychiatry evaluations, allows for the comprehensive assessment of important areas including motivation and expectations about surgery, current and past psychiatric conditions, history of substance or alcohol abuse, family support, understanding of the risks and alternatives of donor surgery for the donor and recipient, and motivation for donation including any evidence of coercion.
Insights
Living donor surgery is increasing, but concerns about donor well-being necessitate careful assessment. Comprehensive evaluations help ensure donor safety and satisfaction, addressing psychosocial factors and potential coercion.
Area of Science:
- Transplantation Surgery
- Medical Ethics
- Psychosocial Health
Background:
- Living donor organ donation is rising due to organ shortages, with more unrelated donors seeking evaluation.
- Factors like reduced surgical risks and increased publicity are driving this trend.
- Concerns about donor coercion, psychosocial outcomes, and safety have prompted re-evaluation of donor assessment protocols.
Purpose of the Study:
- To explore the psychosocial outcomes for living organ donors.
- To identify best practices for assessing potential living donors, particularly regarding psychosocial factors.
- To understand the experiences of donors who are excluded from donation.
Main Methods:
- Review of existing research on living donor quality of life and psychosocial outcomes.
- Discussion of the importance of multidisciplinary team assessments.
- Highlighting key areas for comprehensive donor evaluation: motivation, psychiatric history, substance abuse, support systems, and understanding of risks.
Main Results:
- Most living donors report long-term satisfaction with their decision.
- Some studies indicate potential psychiatric issues following donor surgery.
- Limited data exists on the psychosocial outcomes for individuals excluded from donating.
Conclusions:
- A multidisciplinary approach involving social work and psychiatry is crucial for comprehensive living donor assessment.
- Thorough evaluation of motivation, psychosocial history, and understanding of risks is essential.
- Ensuring donor safety and well-being requires careful consideration of all psychosocial aspects.
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