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Working with Human Tissues for Translational Cancer Research
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Should research ethics committees meet in public?

M Sheehan1

  • 1Program on the Ethics of the New Biosciences, Faculty of Philosophy and James Martin 21 Century School, University of Oxford, Littlegate House, 16/17 St Ebbes Street, Oxford OX1 1PT, UK. mark.sheehan@philosophy.ox.ac.uk

Journal of Medical Ethics
|August 1, 2008
PubMed
Summary

Research ethics committees (RECs) in the UK should increase public accountability. While fully open meetings may not be feasible, adjustments towards greater transparency are warranted for societal trust.

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Area of Science:

  • Bioethics
  • Public Health Policy
  • Research Governance

Background:

  • Research ethics committees (RECs) in the UK operate with limited public transparency.
  • A societal presumption of openness conflicts with the current closed-door practices of RECs.
  • RECs function as public institutions overseeing research from a societal perspective.

Purpose of the Study:

  • To adapt Daniels and Sabin's accountability for reasonableness model to the research ethics context.
  • To explore the implications of this model for the openness of REC meetings.
  • To address the tension between REC confidentiality and societal expectations of transparency.

Main Methods:

  • Adaptation of the accountability for reasonableness framework.
  • Analysis of arguments for and against open REC meetings.
  • Ethical and policy evaluation of REC transparency.

Main Results:

  • The accountability for reasonableness model offers structural legitimacy for RECs.
  • Arguments against fully public meetings do not negate the need for increased openness.
  • Partial openness and adjustments towards public accountability are suggested.

Conclusions:

  • The current REC system requires adjustments to enhance public accountability.
  • Fully public REC meetings may not be the optimal solution, but greater transparency is necessary.
  • Balancing confidentiality with societal expectations is crucial for REC legitimacy.