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The FAP self-concept scale (adult form)
Mary Jane Esplen1, Noreen Stuckless, Terri Berk
1Behavioral Sciences and Health Research Division, Toronto General Research Institute, University Health Network, E-9-242A, 200 Elizabeth Street, Toronto, ON, Canada. mesplen@uhnres.utoronto.ca
Unlabelled:
Familial Adenomatous Polyposis (FAP) is a dominantly inherited disorder characterized by multiple colorectal adenomas associated with a 100% risk of early colorectal cancer. A diagnosis of FAP may alter a person's self-concept, which in turn may impact on an individual's quality of life and screening behaviors.
Purpose:
The purpose of the study was to develop and validate a scale for measuring the impact of being diagnosed with FAP on an individual's self-concept.
Methods:
The study was conducted in two phases: Phase (1) Item generation and refinement, and Phase (2) Scale selection and initial validation. Adults age 18 and older.
Results:
During Phase 1, scale items were generated through individual interviews and two professionally led focus groups. In Phase 2, 132/200 (66%) participants completed the 41-item candidate scale and a battery of standardized validating measures. The mean age of participants was 48 (12.2) years (range 21-74), 57% were female, 72% were married and 69% were Anglo-Canadian. The study resulted in a 23-item valid and reliable scale, Cronbach's alpha = .92, inter-item correlation = .34, total variance explained = 52.6%, low correlation with social desirability, and expected relationships with the other validating measures. Factor analysis resulted in three subscales representing the dimensions of stigma, self-esteem and mastery.
Conclusions:
A promising new scale for measuring self-concept among adults with FAP has been developed. The instrument has potential use as a clinical screening tool and a research measure that will contribute to the empirical and theoretical literature.
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