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Published on: February 5, 2019
[Quality of follow-up of children]
1AMP Eylow, Cherest la Muette, 55 Rue Saint-Didier, Paris, France. cohenbacriepaul@gmail.com
Insights
Nonmedical follow-up of children born via assisted reproductive technology (ART) is recommended. Direct patient-provider contact, not just questionnaires, is crucial for evaluating ART outcomes, as exemplified by the FOLLOW UP program in France.
Area of Science:
- Reproductive Medicine
- Pediatric Health
- Medical Ethics
Context:
- Guidelines recommend nonmedical follow-up for children conceived via assisted reproductive technology (ART).
- Evaluating the long-term consequences, both positive and negative, of ART conception is essential.
- Medical confidentiality, as per CNIL regulations, influences follow-up methodologies.
Purpose:
- To highlight the importance of direct healthcare professional engagement in ART child follow-up.
- To advocate for a relational approach over sole reliance on questionnaires.
- To present the FOLLOW UP program as a model for effective ART follow-up.
Summary:
- The FOLLOW UP program, implemented in 27 French ART centers, facilitates direct patient-provider interaction for nonmedical follow-up.
- This approach ensures comprehensive evaluation of ART-conceived children's outcomes.
- It adheres to medical confidentiality principles while prioritizing a direct relationship.
Impact:
- Promotes best practices in long-term care for ART-conceived individuals.
- Enhances the quality and depth of data collected on ART outcomes.
- Establishes a precedent for ethical and effective patient follow-up in reproductive medicine.
Abstract:
A nonmedical follow-up of the children born through ART is recommended by guidelines to evaluate any consequences, whether beneficial or harmful, of their mode of conception. Governed by medical confidentiality, according to the CNIL, this follow-up should not be done only through a questionnaire but by a direct relation with a healthcare professional. FOLLOW UP, used in 27 ART centers in France, is an example of this follow-up.
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Guidelines for Writing Outcome
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care evaluation by...