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Updated: Jul 1, 2026
Systematic Hearing Performance Evaluation Process for Adolescents with Cochlear Implantation at Early Ages
Published on: March 24, 2023
Parental experiences of a paediatric cochlear implant programme
L C Edwards1, B M MacArdle, A Doney
1Cochlear Implant Programme, Great Ormond Street Hospital for Children, Great Ormond Street, London WC1N 3JH, UK.
Insights
Most parents are satisfied with cochlear implantation services for their deaf children, finding information adequate despite experiencing higher distress than anticipated. Overall, the treatment met parental expectations for their child
Area of Science:
- Audiology
- Pediatric Medicine
- Otolaryngology
Background:
- Cochlear implantation is a standard treatment for profound deafness in children.
- Limited research exists on parental satisfaction with pediatric cochlear implant services and outcomes.
- Parental expectations and experiences are crucial aspects of treatment evaluation.
Purpose of the Study:
- To assess parental satisfaction with cochlear implantation treatment, including assessment, surgery, and rehabilitation.
- To evaluate whether the treatment met parents' expectations.
- To identify areas for service improvement in pediatric cochlear implantation.
Main Methods:
- A confidential postal questionnaire was administered to 44 parents of children who received cochlear implants.
- The questionnaire focused on satisfaction with information, perceived distress, and physical discomfort.
- Data analysis involved evaluating parental feedback on the overall service and outcomes.
Main Results:
- The majority of parents found the information provided to be sufficient and appropriate.
- Many parents reported experiencing higher levels of distress than anticipated.
- Parents perceived their children as experiencing less physical discomfort than expected.
Conclusions:
- Pediatric cochlear implantation services are generally viewed positively by parents regarding information and outcomes.
- While parental distress is a factor, the overall treatment is considered effective.
- Minor service improvements were suggested, but overall satisfaction indicates a well-functioning system.
Abstract:
Although cochlear implantation is a well-established procedure in profoundly deaf children, very little research has investigated whether parents are satisfied with the treatment (including assessment, surgery and rehabilitation) or its outcome, and whether it has met their expectations. In this study, 44 parents of children who had received cochlear implants completed a confidential postal questionnaire. Results indicated that the majority of parents felt that the information they and their child received was both sufficient and appropriate. Many parents experienced more distress than they anticipated, but perceived their child as having experienced less physical discomfort than expected. Some suggestions for improving the service were made, but in general it was felt that little more could be done to inform our 'consumers', or to reduce levels of stress.