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Published on: April 29, 2013
[Quality-of-life measures in pediatric cardiology]
Andrea Berkes1, Gábor Mogyorósy
1Debreceni Egyetem, Orvos- és Egészségtudományi Centrum Gyermekklinika, Debrecen, Nagyerdei krt. 98. 4032. berkesa@dote.hu
Insights
Quality of life measures are crucial in pediatric cardiology, offering valuable patient-centered outcomes. Implementing these assessments can significantly enhance the standard of care for children with heart conditions.
Area of Science:
- Pediatric Cardiology
- Cardiac Surgery Outcomes
Context:
- Growing need for patient-reported outcome measures in pediatric cardiac care.
- Limited awareness among medical professionals regarding quality of life (QoL) assessment standards and applicability.
- Challenges in pediatric QoL research due to measurement difficulties, impacting study numbers.
Purpose:
- To review professional expectations for QoL measures in pediatric cardiology.
- To summarize findings from existing QoL studies in pediatric cardiology from a clinical perspective.
Summary:
- Literature survey of QoL measures in adult and pediatric populations with congenital heart disease.
- Presentation of key results and methodological characteristics of relevant studies.
- QoL measures are recognized as valuable tools in pediatric cardiology.
Impact:
- QoL assessments can improve the overall level of care for pediatric cardiac patients.
- Highlights the importance of patient-centered outcomes in clinical practice.
- Encourages further research and implementation of validated QoL tools.
Unlabelled:
The need of outcome measures from the patients' aspect emerges reasonably in the field of rapidly developing pediatric cardiac surgery and pediatric cardiology. The professional standards and the possibilities of applicability of quality of life measures are often unknown for medical doctors. This is particularly true in pediatrics due to the numerous difficulties of pediatric measures and--in consequence--to the lower number of correct investigations.
Aim:
To summarize the basic professional expectations and results of previous quality of life studies performed in pediatric cardiology from a clinical point of view.
Method:
Survey of the literature of quality of life measures performed on mixed or specified adult and child population with congenital heart disease with a presentation of the main results and the basic characteristics of methodology.
Conclusion:
According to previous results, quality of life measures have a role in pediatric cardiology. Adequate measures can improve the level of care.
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