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Creating a medical home for the child with recurrent respiratory papillomatosis

Deborah S Rosenberg1

  • 1National Recurrent Respiratory Papillomatosis Task Force, USA.

Orl-Head and Neck Nursing : Official Journal of the Society of Otorhinolaryngology and Head-Neck Nurses
|October 1, 2008
PubMed

Insights

Juvenile onset recurrent respiratory papillomatosis (JORRP) is a chronic pediatric airway disease caused by human papillomavirus. This paper details JORRP

Area of Science:

  • Pediatric Pulmonology
  • Infectious Diseases
  • Public Health

Background:

  • Juvenile onset recurrent respiratory papillomatosis (JORRP) is a chronic airway disease in children.
  • It is caused by the human papillomavirus (HPV).
  • JORRP significantly impacts a child's quality of life and requires long-term management.

Purpose of the Study:

  • To provide a comprehensive overview of JORRP in pediatric patients.
  • To discuss the etiology, epidemiology, clinical presentation, diagnosis, and treatment options for JORRP.
  • To highlight the role of the pediatric nurse practitioner in managing JORRP within the medical home model.

Main Methods:

  • Literature review and synthesis of existing research on JORRP.
  • Discussion of diagnostic criteria and current therapeutic strategies.
  • Exploration of primary care principles applied to chronic pediatric conditions.

Main Results:

  • HPV is the causative agent of JORRP.
  • JORRP presents with varied symptomatology including hoarseness and respiratory distress.
  • Effective management involves a multidisciplinary approach and coordinated care.

Conclusions:

  • JORRP is a complex pediatric condition requiring specialized care.
  • The medical home model provides a framework for comprehensive, coordinated management of JORRP.
  • Pediatric nurse practitioners play a crucial role in delivering primary care for children with JORRP.

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