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Finding the right words: using the terms allow natural death (AND) and do not resuscitate (DNR) in pediatric
Barbara L Jones1, Jessica Parker-Raley, Renee Higgerson
1Institute for Grief, Loss and Family Survival, University of Texas-Austin School of Social Work, USA. barbarajones@mail.utexas.edu
Insights
Pediatric providers find "allow natural death" (AND) ambiguous but potentially more family-centered than "do not resuscitate" (DNR) when discussing end-of-life care for dying children.
Area of Science:
- Pediatric healthcare
- Medical ethics
- End-of-life care communication
Background:
- Healthcare providers guide families through critical end-of-life decisions for children.
- Standard terminology like "do not resuscitate" (DNR) is often used.
- Alternative terms, such as "allow natural death" (AND), are also employed.
Purpose of the Study:
- To investigate pediatric healthcare providers' perceptions of using "allow natural death" (AND) versus "do not resuscitate" (DNR).
- To understand provider beliefs regarding the suitability of AND in pediatric end-of-life discussions.
Main Methods:
- Survey or interview-based study with pediatric healthcare providers.
- Exploration of provider attitudes towards AND and DNR terminology.
- Analysis of perceived clarity and family-centeredness of each term.
Main Results:
- Providers perceive "allow natural death" (AND) as somewhat ambiguous.
- Healthcare providers believe AND may be a more family-centered approach compared to DNR.
- The study highlights nuances in communication preferences for pediatric palliative care.
Conclusions:
- The choice of terminology in end-of-life care discussions significantly impacts family perception.
- Further research is needed to optimize communication strategies for pediatric palliative care.
- AND may offer a more compassionate alternative to DNR, despite its ambiguity.
Abstract:
When children are dying in a hospital setting, healthcare providers need to help families make important end-of-life care decisions. Most providers use the term do not resuscitate (DNR) when suggesting a course of action that involves not using extraordinary lifesaving measures. Some healthcare providers use the term allow natural death (AND) to discuss this same approach. This study investigated pediatric healthcare providers' beliefs about using AND as opposed to DNR. Results revealed that providers believe the term AND is somewhat ambiguous but may be more family centered.
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