Individuals with developmental disabilities and their caregivers
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Updated: Jun 28, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Philip McCallion1, Tara Nickle
1State University of New York-Albany, Richardson Hall 209 (Social Welfare), 135 Western Ave., Albany, NY 12222, USA.
Abstract:
Adults with Developmental Disabilities (DD) are experiencing increased longevity and the projected number of older persons with DD is expected to double by 2020. As a result, concerns have been raised that agencies and professional staff are ill-prepared to address the increased needs of an older population with lifelong disabilities. The caregiving life of familis of person with DD now spans multiple decades and is increasingly a feature of advanced age for parents and grandparents, and of old age for siblings. Problem behaviors, onset or poor management of mental health concerns and inadequate planning for their aging years are the biggest barriers to successful aging for persons with developmental disabilities. However, psychosocial interventions have the potential to alleviate these barriers and promote positive aging for older persons with developmental disabilities. The evidence for the effectiveness of such interventions will be examined within this article.
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