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Published on: November 4, 2010
Normalization strategies of children with asthma
Jennifer L P Protudjer1, Anita L Kozyrskyj, Allan B Becker
1Department of Applied Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.
Insights
Children with asthma often feel different and use strategies to cope. They minimize health impacts, stress normality, emphasize abilities, adapt daily life, and manage symptoms with medication.
Area of Science:
- Pediatric pulmonology
- Child psychology
- Qualitative health research
Background:
- Physiologic effects of childhood asthma are understood.
- Children's lived experiences and perceptions of asthma are less explored.
Purpose of the Study:
- To understand how children perceive living with asthma.
- To identify children's strategies for normalizing their lives despite asthma.
Main Methods:
- Semistructured, in-depth interviews conducted with 22 children (11 boys, 11 girls) aged 11.
- Participants were diagnosed with asthma by a pediatric allergist.
- Children were recruited from a larger ongoing asthma study.
Main Results:
- Children described feeling different and experiencing "pain" and "hurt."
- Identified normalization strategies include: minimizing health impact, stressing normality, emphasizing abilities, adapting daily life, and managing symptoms with medication.
Conclusions:
- Children with asthma employ various strategies to normalize their lives.
- These normalization efforts are comparable to those used by children with other chronic diseases.
Abstract:
Despite understanding the physiologic effects of childhood asthma, less is known about how children perceive living with asthma. We undertook semistructured, in-depth interviews with 11 boys and 11 girls (all aged 11) drawn from a larger ongoing asthma study of Manitoba children born in 1995. All had asthma, as diagnosed by a pediatric allergist. We sought to further understand how children perceive asthma. Children spoke of feeling different and commonly used words such as "pain" and "hurt." We have categorized children's strategies to normalize their lives as (a) minimizing the health impact, (b) stressing normality, (c) emphasizing abilities, (d) making adaptations in daily living, and, (e) managing symptoms with medications. These findings suggest that aspects of other researchers' work regarding normalization efforts of children with various chronic diseases also apply in a chronic condition that is less obvious.
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