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Children's Perceptions of Healthcare Survey
Linda Lindeke1, Jayne Fulkerson, Mary Chesney
1School of Nursing, University of Minnesota, 308 Harvard Street SE, Minneapolis, MN 55455, USA. linde001@umn.edu
Insights
A new survey effectively captures children's unique perspectives on healthcare quality. This tool provides valuable insights for improving pediatric care, unlike relying solely on parent proxy reports.
Area of Science:
- Pediatric healthcare quality improvement
- Patient-reported outcomes in children
- Child psychology and healthcare experiences
Background:
- Limited validated tools exist for assessing children's direct perceptions of healthcare.
- Parent surveys are often used as proxies, potentially missing children's unique viewpoints.
- A child-focused survey is crucial for accurate quality improvement in pediatric settings.
Purpose of the Study:
- To develop and evaluate the reliability of a child-focused healthcare survey.
- To assess differences in survey scores based on children's age.
- To compare children's and parents' perceptions of healthcare experiences.
Main Methods:
- The Children's Perceptions of Healthcare Survey was developed for inpatient and outpatient settings.
- The survey was administered to 237 parent-child dyads post-discharge or post-clinic visit.
- Psychometric properties, including reliability and score comparisons, were analyzed.
Main Results:
- The survey demonstrated high internal consistency reliability for both children (alpha = .84) and parents (alpha = .86).
- No significant differences in scores were found based on child age or gender.
- Child and parent scores were significantly correlated (r = 0.29, P < .001), with parents often reporting higher scores than children.
Conclusions:
- The Children's Perceptions of Healthcare Survey is a valid and reliable tool for assessing children's views across various healthcare settings.
- Directly involving children in care assessment yields unique insights often missed by parent-only surveys.
- This tool supports quality improvement initiatives by capturing children's authentic healthcare experiences.
Background:
Few validated pediatric tools exist to directly gather data about children's perceptions of their own healthcare; parent surveys are typically used as proxies. A psychometrically sound, child-focused survey captures children's unique perceptions for quality improvement.
Objectives:
This study developed and evaluated reliability of a survey, assessed score differences by children's age, and compared the responses of children and parents.
Method:
The Children's Perceptions of Healthcare Survey was developed for inpatient and outpatient quality improvement. Following expert review, the tool was administered to 237 parent-child dyads at the time of discharge from an inpatient pediatric unit (n = 121) and after outpatient clinic visits (n = 116). Responses were analyzed and compared.
Results:
Internal consistency reliability for the tool was high (child/adolescents: alpha = .84; parents: alpha = .86), with no significant differences by child age or child gender. Parent and child scores were significantly correlated (r = 0.29, P < .001). About half of parents' scores were higher than their children's scores.
Discussion:
This tool worked well to collect data from a wide age range of children across healthcare settings. Children's perceptions were unique; involving children in care assessment is worthwhile and captures insights missed when only parents are surveyed. The Children's Perceptions of Healthcare Survey is a valid, psychometrically sound tool to capture children's unique perspectives regarding their healthcare and may be useful for system quality improvement.
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