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Living with chronic obstructive pulmonary disease: developing conscious body management in a shrinking life-world
Janice Gullick1, M Colleen Stainton
1Department of Cardiology, Concord Repatriation General Hospital, University of Sydney, Australia. janice.gullick@email.cs.nsw.gov.au
Journal of Advanced Nursing
|January 6, 2009
Summary
Individuals with severe emphysema face a constricted world due to breathlessness, impacting their body
Area of Science:
- Phenomenology
- Emphysema research
- Patient experience
Background:
- Chronic obstructive pulmonary disease (COPD) is a leading cause of death globally.
- COPD prevalence and mortality are projected to increase.
- Further understanding of patient and family goals is needed for effective care.
Purpose of the Study:
- To explore the lived experiences of individuals with COPD.
- To understand the bodily changes associated with severe emphysema.
Main Methods:
- Heideggerian phenomenology with a Merleau-Ponty framework.
- In-depth interviews with 15 people with emphysema and 14 family members.
- Hermeneutic analysis of 58 interviews conducted between 2003 and 2005.
Main Results:
- Severe emphysema significantly alters an individual's life-world, primarily through breathlessness.
- The condition diminishes bodily autonomy and personal efficacy.
- Patients develop conscious body management strategies to aid breathing, mobility, and daily tasks.
Conclusions:
- Understanding the altered body and patient expertise is crucial for effective care planning.
- Assessing and utilizing patient expertise enhances care sensitivity and appropriateness.
- Meaningful therapeutic outcomes depend on patient-centered care and evaluation.
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