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Planning for the end of children's lives--the lifetime framework

F Finlay1, M Lewis, S Lenton

  • 1Child Health Department, Newbridge Hill, Bath, UK. fiona.finlay@banes-pct.nhs.uk

Child: Care, Health and Development
|January 22, 2009
PubMed

Insights

A new best practice framework was developed to improve end-of-life care planning engagement for children with life-limiting conditions. This framework aids communication between families and healthcare providers during difficult decisions.

Area of Science:

  • Pediatric Palliative Care
  • Healthcare Communication Strategies
  • Family-Centered Care Models

Background:

  • Limited literature exists on engaging families in end-of-life planning for children with life-limiting conditions.
  • Effective communication is crucial for shared decision-making in pediatric end-of-life care.

Purpose of the Study:

  • To develop a best practice framework to enhance child and family engagement in end-of-life planning.
  • To improve the process of care planning for children with non-malignant life-limiting conditions.

Main Methods:

  • A clinical case note audit was conducted.
  • A best practice framework was developed using a Delphi process with clinical practitioners.

Main Results:

  • A 3x3 framework was created to facilitate communication.
  • The framework is designed to support parents and children during end-of-life decision-making.

Conclusions:

  • The developed framework has been positively received by parents and practitioners.
  • Future audits will assess the implementation and impact of the framework in clinical practice.
Abstract

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