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Problem behaviours and parenting in preschool children with cystic fibrosis

C Ward1, J Massie, J Glazner

  • 1Centre for Community Child Health, Royal Children's Hospital, Parkville, Australia. christopher_ward@health.qld.gov.au

Archives of Disease in Childhood
|January 22, 2009
PubMed

Insights

Sleep, eating, and therapy adherence problems are common in children with cystic fibrosis (CF). Caregiver mental health issues and harsh parenting styles were also prevalent, highlighting the need for integrated support.

Area of Science:

  • Pediatrics
  • Child Psychology
  • Cystic Fibrosis Research

Background:

  • Sleep, eating, and therapy adherence issues can negatively impact health outcomes in children with cystic fibrosis (CF).
  • Limited data exists on the prevalence of these problems, associated parenting styles, and caregiver mental health in this population.

Purpose of the Study:

  • To determine the prevalence of sleep, mealtime, therapy adherence, and behavioral problems in preschool children with CF.
  • To assess caregiver mental health and sleep quality.
  • To examine associations between child behavioral problems and parenting styles.

Main Methods:

  • Cross-sectional survey of caregivers of children aged 6 months to 5 years attending CF outpatient clinics.
  • Outcome measures included child behaviors (externalizing/internalizing), sleep, eating, and therapy adherence.
  • Parenting styles (harsh, inconsistent, overprotective) were assessed as predictors.

Main Results:

  • Problems with sleep (53.5%), eating (32.4%), and physiotherapy adherence (50.4%) were common in preschool children with CF.
  • Caregivers reported high rates of depression (33.3%), anxiety (16.4%), and stress (34.2%).
  • Harsh parenting was significantly associated with internalizing behaviors (adjusted OR 3.9).

Conclusions:

  • Sleep, eating, and physiotherapy adherence problems are frequent in preschool children with CF.
  • Caregivers experience significant mental health challenges.
  • Interventions addressing both child behavioral issues and parental mental health are recommended for CF families.
Abstract

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