Living environment of persons with severe epilepsy and intellectual disability: a prospective study

We studied a population with intellectual disability (ID) and epilepsy and analyzed aspects of the living environment. Using an epilepsy impact score (EPIEK, the Epilepsy Impact Scale Kempenhaeghe), we found that epilepsy is more severe in younger persons than in older persons until about age 60 years. Individuals with more adaptive behavior had less severe epilepsy. Compared with persons with ID, the subjects in this study had fewer sensory problems and many more mobility problems, and more often saw a general practitioner. We concluded that people with severe epilepsy and ID have, in some ways, the same needs as people with only ID, and yet, in other ways (development of adaptive skills and aspects of living environment), distinctly different needs.