Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Ethics in Research01:56

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
Ethical Standards II01:23

Ethical Standards II

Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
Ethical Standards I01:25

Ethical Standards I

The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
Archival Research01:40

Archival Research

Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
Types of Reports II: Incident or Occurrence Report01:21

Types of Reports II: Incident or Occurrence Report

An Incident or Occurrence Report in a healthcare setting is a crucial document used to record any unexpected occurrence that may or may not have affected a patient, employee, or visitor. Such reports are critical to improving patient safety and include all details leading up to and including the event.
Purposes:
In the healthcare industry, reports play a crucial role in documenting incidents within an agency. The primary objective of these reports is to ensure patient safety, uphold the...
Legal Guidelines for Documentation01:06

Legal Guidelines for Documentation

The legal guidelines for nursing documentation are essential for ensuring accurate, professional, and ethical recording of patient care. The guidelines are discussed here:

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Primary care research network progress in Scotland.

The European journal of general practice·2014
See all related articles

Related Experiment Video

Updated: Jun 25, 2026

Working with Human Tissues for Translational Cancer Research
07:48

Working with Human Tissues for Translational Cancer Research

Published on: November 26, 2015

Data confidentiality and data handling in research: a workshop report.

Alison Hinds1

  • 1Scottish School of Primary Care, University of Dundee, Scotland, UK. a.hinds@sspc.ac.uk

Informatics in Primary Care
|February 5, 2009
PubMed
Summary

Guidelines for using patient data in research were developed to ensure confidentiality and best practices. These recommendations aim to facilitate the use of medical records for research while protecting sensitive personal information.

More Related Videos

Integrating Computerized Linguistic and Social Network Analyses to Capture Addiction Recovery Capital in an Online Community
08:53

Integrating Computerized Linguistic and Social Network Analyses to Capture Addiction Recovery Capital in an Online Community

Published on: May 31, 2019

Related Experiment Videos

Last Updated: Jun 25, 2026

Working with Human Tissues for Translational Cancer Research
07:48

Working with Human Tissues for Translational Cancer Research

Published on: November 26, 2015

Integrating Computerized Linguistic and Social Network Analyses to Capture Addiction Recovery Capital in an Online Community
08:53

Integrating Computerized Linguistic and Social Network Analyses to Capture Addiction Recovery Capital in an Online Community

Published on: May 31, 2019

Area of Science:

  • Medical Informatics
  • Public Health Research
  • Data Privacy in Healthcare

Background:

  • Medical records are essential for patient care and possess significant research potential.
  • Patient data includes sensitive personal information requiring careful handling.
  • The Wellcome Trust developed draft guidelines for using patient data in research.

Purpose of the Study:

  • To provide best practice guidelines for the use of general practice records in research.
  • To establish a consensus on the ethical and practical considerations of medical record research.
  • To inform researchers and healthcare providers on the appropriate use of patient data.

Main Methods:

  • A consensus statement on patient data use in research was drafted by the Wellcome Trust.
  • Recommendations were discussed at a workshop involving primary care researchers and NHS R&D staff.
  • The workshop was held at the Society for Academic Primary Care (SAPC) Annual Conference 2008.

Main Results:

  • Workshop delegates largely supported the draft consensus recommendations.
  • Key recommendations include a national campaign on data use for research.
  • Standard operating procedures and strict confidentiality for all patient data were emphasized.

Conclusions:

  • The consensus document provides a framework for the ethical and effective use of patient records in research.
  • Implementation of clear procedures and national awareness campaigns are crucial for successful data utilization.
  • Ensuring patient data confidentiality is paramount in all research endeavors.