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Published on: June 12, 2020
The experiences of primary caregivers raising school-aged children with attention-deficit hyperactivity disorder
Mei-Jue Lin1, Xuan-Y Huang, Bai-Jin Hung
1Nursing Department, Tsaotun Psychiatric Center Department of Health, Nantou, Taiwan, ROC.
Insights
Caring for school-aged children with attention-deficit hyperactivity disorder (ADHD) presents significant burdens for primary caregivers. This study highlights the need for improved support systems and professional services to alleviate these challenges.
Area of Science:
- Child Psychology
- Family Studies
- Healthcare Research
Background:
- Attention-deficit hyperactivity disorder (ADHD) affects 7.9-11.7% of school-aged children in Taiwan.
- This study is the first to explore the experiences of primary caregivers of school-aged children with ADHD in Taiwan.
Purpose of the Study:
- To understand the lived experiences of primary caregivers raising school-aged children with ADHD.
- To identify challenges and coping mechanisms of these caregivers.
- To inform improvements in care and support services.
Main Methods:
- Qualitative phenomenological approach.
- In-depth, face-to-face interviews with 12 primary caregivers.
- Data analyzed using Colaizzi's seven-step method.
Main Results:
- Caregivers experience significant burdens: parenting, emotional, and family conflicts.
- Inadequate support systems from professionals, spouses, and family members were identified.
- Caregivers utilize cognitive and social coping strategies.
Conclusions:
- Understanding caregiver experiences is crucial for effective intervention.
- Enhancing professional services and family support is essential for families with children with ADHD.
- Recommendations can guide improved care delivery for children with ADHD.
Aims And Objectives:
To understand the experiences of primary caregivers who are bringing up school-aged children with attention-deficit hyperactivity disorder. The research findings will help address the problems related to caring for school-aged children with attention-deficit hyperactivity disorder.
Background:
In Taiwan, the rate of school-aged children diagnosed with attention-deficit hyperactivity disorder ranges from 7.9-11.7%. This study is the first, which tries to understand the experiences of primary caregivers who are bringing up school-aged children with attention-deficit hyperactivity disorder in Taiwan.
Design:
The study used a qualitative phenomenological approach to explore the experiences of caregivers raising school-aged children with attention-deficit hyperactivity disorder.
Methods:
Purposive sampling and in-depth, face-to-face interviews were used to collect data. The unstructured interview guide allowed the major caregivers to express their experiences of raising school-aged children with attention-deficit hyperactivity disorder. When data saturation was reached, the sample size comprised 12 major caregivers. Narratives were analysed according to Colaizzi's seven-step method.
Results:
Three themes and seven sub-themes emerged from this study: the burdens of caring (parenting burdens, emotional burdens and family conflicts), the lack of adequate support systems (lack of support from professionals, spouses and other family members) and the mechanisms of coping (cognitive coping strategies and social coping strategies). Furthermore, several other factors that affected the caregivers of children with attention-deficit hyperactivity disorder are also revealed in the study.
Conclusion:
The findings of the study demonstrate the importance of understanding the experiences of primary caregivers, bringing up school-aged children with attention-deficit hyperactivity disorder. Improving professional services in family care should be a major concern for all healthcare professionals.
Relevance To Clinical Practice:
The recommendations that have been made based on the findings of this research can be used as a guide to improve the delivery of caring by people who have school-aged children with attention-deficit hyperactivity disorder and by the wider family.
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