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Research priorities in pediatric palliative care: a Delphi study
Rose Steele1, Harvey Bosma, Meaghen Fletcher Johnston
1School of Nursing, Faculty of Health, York University, Toronto, Ontario.
Journal of Palliative Care
|February 21, 2009
Summary
Research identified key priorities for pediatric palliative care in Canada. This includes understanding patient/parent needs, family bereavement, pain management, and end-of-life suffering alleviation.
Area of Science:
- Palliative Care
- Pediatric Healthcare
- Clinical Research
Background:
- Pediatric palliative care requires specialized expertise.
- Limited research evidence currently guides pediatric palliative care practices.
- There is a recognized need for evidence-based care in this field.
Purpose of the Study:
- To establish consensus among experts on critical research areas in pediatric palliative care.
- To identify and prioritize future research directions.
Main Methods:
- A Delphi technique was employed.
- An interdisciplinary panel of 14-16 Canadian researchers and clinicians participated.
- Expert consensus was achieved through iterative feedback.
Main Results:
- Four priority research areas were identified.
- Key questions focus on patient/parent needs, family bereavement support, pain/symptom management standards, and end-of-life suffering.
- Specific research questions were formulated to guide future studies.
Conclusions:
- The identified research priorities will direct future pediatric palliative care research in Canada.
- These priorities aim to improve care quality for children and families.
- Findings offer a framework for advancing evidence-based pediatric palliative care.
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