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Guest at hospice: time for consideration
1School of Life Sciences, University of Skövde, Skövde, Sweden. margareta.warren.stomberg@gu.se
The American Journal of Hospice & Palliative Care
|February 27, 2009
Summary
Terminally ill patients in hospices value staff encouragement, pain relief, and family visits. They also need privacy for life reflection and reconciliation to achieve well-being.
Area of Science:
- Palliative Care
- End-of-Life Studies
- Qualitative Research
Background:
- Hospice care aims to improve the quality of life for terminally ill patients.
- Understanding the daily lived experiences of hospice residents is crucial for enhancing care.
- Previous research has explored various aspects of end-of-life care, but resident perspectives on daily well-being require further in-depth exploration.
Purpose of the Study:
- To explore the daily life situations and perceived well-being of terminally ill individuals in a hospice setting.
- To identify the key internal and external factors that contribute to the well-being of hospice residents.
Main Methods:
- Qualitative study involving in-depth interviews with nine terminally ill hospice guests.
- Content analysis methodology was employed to analyze interview data.
- Identification of emergent themes related to resident well-being.
Main Results:
- Key factors for well-being include staff encouragement and pain alleviation.
- A calm hospice atmosphere and significant family visits are essential.
- Residents expressed regret over loss of self-care and a need for life reconciliation time.
Conclusions:
- Hospice residents require a balance of social connection (family, staff) and personal privacy for reflection.
- Addressing both external needs (pain, environment) and internal needs (life reconciliation) is vital for holistic end-of-life care.
- Findings underscore the importance of a supportive and reflective environment in hospice care.
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