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The silent demand in the diagnostic phase.
Tove Giske1, Eva Gjengedal, Barbara Artinian
1Bergen Deaconess University College, Bergen, Norway. tove.giske@haraldsplass.no
Scandinavian Journal of Caring Sciences
|March 3, 2009
Summary
Patients undergoing medical diagnosis often feel vulnerable, with their preparation for results being overlooked. Building trust with healthcare providers allows patients to share their concerns openly, highlighting the need for a supportive care culture.
Area of Science:
- Medical Sociology
- Patient Experience Research
- Grounded Theory
Background:
- The patient's experience during the diagnostic phase is often neglected by healthcare professionals.
- Patients' internal preparations for receiving diagnoses are hidden due to situational vulnerability.
Purpose of the Study:
- To explore and understand patients' experiences during the diagnostic phase in a hospital setting.
- To develop a theory explaining how patients prepare for diagnosis and its implications for healthcare.
Main Methods:
- Grounded theory methodology was employed.
- 18 in-depth interviews were conducted with 15 patients undergoing medical investigation at a Norwegian university hospital's gastric ward between 2002-2003.
Main Results:
- 'Preparative Waiting Theory' was generated, describing patients' self-preparation for diagnosis.
- Patient vulnerability during this phase was illustrated through interview examples.
- Trust between patients and healthcare providers facilitates open disclosure of life stakes.
Conclusions:
- The ethical demands of patients in the diagnostic phase are often silent and challenging for clinicians to meet.
- Developing a culture that fosters patient care is a professional responsibility for nurses and physicians.
- Trust is essential for patients to reveal their concerns without feeling exposed or embarrassed.
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