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Optimization of Breast Biopsy and Mastectomy Sample Collection Procedures for Biobanking, Personalized Medicine, and Research Applications
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Building a shared patient record for breast cancer management: a French Delphi study
L Letrilliart1, L Milliat-Guittard, P Romestaing
1Department of Medical Information, Hospices Civils de Lyon, Lyon, France. laurent.letrilliart@wanadoo.fr
European Journal of Cancer Care
|March 10, 2009
Summary
Patient-held records can enhance communication in breast cancer care. A Delphi study involving diverse stakeholders established a consensus for a shared record
Area of Science:
- Oncology
- Health Informatics
- Patient Communication
Background:
- Patient-held records offer a valuable communication tool before widespread electronic health records.
- Effective breast cancer management relies on seamless information exchange between patients and healthcare providers.
Purpose of the Study:
- To design the optimal organization, layout, and content for a shared patient-held record for breast cancer management.
- To achieve consensus on the shared record's structure and content among diverse healthcare stakeholders.
Main Methods:
- A Delphi study was conducted with a working group of 48 stakeholders, including patients and various healthcare professionals.
- Three rounds of mailed questionnaires collected quantitative and qualitative feedback, followed by an evaluation phase.
- Participant consensus was sought on the record's design, including user sections and information categories.
Main Results:
- A consensus was reached on a shared record structure featuring a summary card, distinct user sections (patient, physicians, auxiliaries, other professionals), and a medical imaging section.
- Specific information categories were defined as subsections within each user section.
- Participant satisfaction with the procedure exceeded 90%, with high agreement on the record's proposed design.
Conclusions:
- The developed consensus provides a blueprint for an effective patient-held shared record in breast cancer care.
- This collaborative design approach ensures the record meets the needs of all stakeholders, enhancing patient-provider communication.
- The high satisfaction rate indicates strong support for implementing such shared record systems.
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