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Trained ESRD mentors: an important resource for total patient care
Peggyjayne Pierce1, Robin Asick, Michael Weaver
1Patient-Partner-Program Pilot Project, Kidney Foundation of Central Pennsylvania, USA.
Nephrology News & Issues
|April 10, 2009
Summary
This study highlights a successful patient mentoring program for End-Stage Renal Disease (ESRD) patients. The program provides crucial emotional and practical support, demonstrating its value for kidney disease patients.
Area of Science:
- Nephrology
- Patient Support Systems
- Chronic Disease Management
Background:
- End-Stage Renal Disease (ESRD) presents significant emotional and practical challenges for patients.
- Existing resources for renal patients often lack tailored, peer-based support.
- The Kidney Foundation of Central Pennsylvania (KFCP) identified a need for a structured patient mentoring program.
Purpose of the Study:
- To develop and pilot a patient mentoring program (PPP) for individuals with ESRD.
- To provide trained ESRD patients and caregivers as mentors to offer emotional support and practical guidance.
- To evaluate the effectiveness of the pilot program in addressing unmet patient needs.
Main Methods:
- A systematic approach was used to develop a curriculum for the mentoring program.
- ESRD patients and caregivers were recruited and trained as peer mentors (CPs).
- A matching system was implemented to connect trained mentors with patients (mentees).
Main Results:
- The pilot program, KFCP PPP Pilot Program, was successfully implemented in a three-county region.
- The program demonstrated effectiveness, filling a recognized gap in resources for renal patients.
- The success of the pilot led to the decision to expand the program to KFCP's entire 28-county service area.
Conclusions:
- The KFCP PPP model is effective and can be replicated in other regions.
- Establishing a dedicated staff position (PPP Coordinator) facilitates program expansion.
- All ESRD patients and their loved ones benefit from appropriate, mentor-led support for coping with chronic kidney disease.
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