Michigan genetics plan: a report on the needs assessment process

During 2000-02, Michigan Department of Community Health-Hereditary Disorders and Newborn Screening Programs conducted a needs assessment to develop a comprehensive state genetics plan. The goal was to define the priorities of patients and their families, the general public, health and human service providers, and educators for all four stages of the life cycle (prenatal, newborn, childhood, and adult). The needs assessment process was used to identify available resources in addition to the strengths, weaknesses, and gaps in the current genetic services system. A five-step needs assessment process was designed to collect both quantitative and qualitative data. In preparing for the advancements in genetic technology and related services, the results from this assessment are being used to help refocus existing program functions, delineate goals and objectives for the strategic plan, and guide future genetic services delivery and infrastructure efforts. A 5-year state genetics plan for Michigan was created with input from nearly 1,000 residents.