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[Development of a specialised paediatric palliative home care service]

M Kuhlen1, S Balzer, U Richter

  • 1Klinik für Kinder-Hämatologie, -Onkologie und -Immunologie, Universitätsklinikum Düsseldorf, Duesseldorf, Germany. michaela.kuhlen@med.uni-duesseldorf.de

Klinische Padiatrie
|May 14, 2009
PubMed

Insights

Annually, 1,500-3,000 children in Germany face life-limiting illnesses. A specialized pediatric palliative home care service in Duesseldorf evolved to support these children and families wishing to spend their final days at home.

Area of Science:

  • Pediatric Palliative Care
  • Home Healthcare Services
  • Life-Limiting Illnesses in Children

Context:

  • Germany faces 1,500-3,000 annual child deaths from life-limiting diseases.
  • Patient and family preference for end-of-life care at home.
  • Established a pediatric palliative home care service at the University Children's Hospital of Duesseldorf over 20 years.

Purpose:

  • To evolve from an unstructured voluntary activity into a specialized pediatric palliative team.
  • To provide area-wide professional care for all pediatric palliative patients.
  • To enhance collaboration with resident pediatricians and nursing services.

Summary:

  • A specialized pediatric palliative team has developed over two decades at the University Children's Hospital of Duesseldorf.
  • The service caters to children with life-limiting diseases who wish to receive end-of-life care at home.
  • The team's evolution reflects a growing need for structured, professional support in pediatric palliative home care.

Impact:

  • Aims to achieve comprehensive, professional care across Germany for pediatric palliative patients.
  • Focuses on improving cooperation between the palliative team, pediatricians, and nursing services.
  • Emphasizes the critical role of professional networks and communication in delivering optimal care.

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