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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...

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Related Experiment Videos

Volunteers in palliative care make a difference.

Katrien G Luijkx¹, Jos M G A Schols

¹Department of Tranzo, Tilburg University, Tilburg, Netherlands.

Journal of Palliative Care

|May 19, 2009

Summary

Volunteer support significantly eases the burden for family caregivers of terminally ill patients, offering practical and emotional aid. Enhancing volunteer services, including a closing contact, is crucial for effective palliative care.

Area of Science:

Palliative Care
Family Caregiving
Volunteer Support

Background:

Family caregivers are vital for terminally ill patients' quality of life.
Caregiving demands can become overwhelming, necessitating external support.
Volunteer involvement can alleviate caregiver stress and enhance patient care.

Purpose of the Study:

To explore family experiences with volunteer support in end-of-life care.
To identify areas for improvement in volunteer palliative care services.
To assess public awareness and accessibility of volunteer palliative care.

Main Methods:

Four sequential studies utilizing focus groups (n=22), surveys (n=237), individual interviews (n=6), and an Internet panel (n=1,712).
Qualitative and quantitative data collection to capture diverse family experiences.

Related Experiment Videos

Cross-sectional analysis of caregiver and public perspectives on volunteer roles.

Main Results:

Volunteers provide essential practical and emotional support, reducing caregiver stress.
A need exists for structured volunteer support, including a concluding contact.
Public awareness of volunteer palliative care is high, but access information is lacking.

Conclusions:

Volunteer support is a valuable resource in palliative care, improving patient and family well-being.
Service improvements, such as defined closing protocols and better accessibility, are recommended.
Further research and expanded volunteer programs are needed globally, particularly in the Netherlands.