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A Fine Motor Task to Study Joint Kinematics in a Preclinical Model of Neurodegenerative Disease

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Published on: June 13, 2025

Learning to live with early dementia.

Leona Werezak¹, Norma Stewart

¹Saskatchewan Institute of Applied Science and Technology, Saskatoon, Saskatchewan, Canada.

The Canadian Journal of Nursing Research = Revue Canadienne De Recherche En Sciences Infirmieres

|June 3, 2009

Summary

This study explores the lived experience of early dementia, identifying a 5-stage process from anticipation to acceptance. Understanding this journey is crucial for individuals with early dementia and their support networks.

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Area of Science:

Gerontology
Psychology
Neurology

Background:

Limited research exists on the lived experiences of individuals with early-stage dementia.
Existing literature predominantly focuses on caregiver perspectives, neglecting the patient's viewpoint.

Purpose of the Study:

To explore the process of learning to live with early-stage dementia from the perspective of affected individuals.
To develop a theoretical framework describing the stages individuals navigate after an early dementia diagnosis.

Main Methods:

Qualitative approach utilizing grounded theory.
In-depth interviews conducted with 6 participants diagnosed with early-stage dementia (3 men, 3 women; ages 61-79).

Main Results:

A 5-stage process of learning to live with dementia was identified: antecedents, anticipation, appearance, assimilation, and acceptance.
This process is dynamic, evolving with changes in self-awareness and perception of the external world.

Conclusions:

The findings offer a novel perspective on the personal journey of living with early dementia.
Implications for clinicians and researchers include better-informed support strategies and future research directions for early dementia care.