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Management of related donor care: a European survey
1Department of Clinical Haematology, Haematology Nursing Research and Practice Development, University College Hospital, University College London Hospitals NHS Foundation Trust, London, UK. simon.clare@uclh.nhs.uk
Insights
Related donors face significant commitment. This study found a lack of standardized guidelines for managing related donors in European transplant centers, impacting patient autonomy and information access.
Area of Science:
- Hematology
- Transplantation Nursing
- Medical Ethics
Background:
- Donating bone marrow (BM) or peripheral stem cells is a demanding process for individuals.
- Related donors require special consideration due to the personal relationship with the recipient.
Purpose of the Study:
- To understand current practices in managing related donors across European transplant centers.
- To identify gaps in guidelines, information provision, consent, and follow-up for related donors.
Main Methods:
- A questionnaire was developed by the European Group for Blood and Marrow Transplantation-Nurses Group (EBMT-NG) research subcommittee.
- The survey targeted delegates (N=150) at the 2005 EBMT-NG meeting, focusing on related donor management.
- Key areas investigated included guidelines, patient information, donor consent, and follow-up services.
Main Results:
- Information guidelines for patients primarily originated from local sources (52%).
- Transplant information was mostly provided to related donors by the recipient's transplant team (57%).
- Donor consent was obtained by transplant doctors in 52% of centers, while 25% used non-transplant doctors.
Conclusions:
- There is a notable absence of recognized, standardized guidelines for the management of related stem cell donors.
- Developing standardized guidelines is crucial for upholding donor autonomy, confidentiality, and access to objective information.
- Standardization would enhance the overall care and ethical management of related stem cell donors.
Abstract:
Donating BM or peripheral stem cells is a challenging process that requires a considerable commitment on the part of the donating individual, especially when there is a relationship between donor and recipient. In order to develop a better understanding of related donor management, the research subcommittee of the European Group for Blood and Marrow Transplantation-Nurses Group (EBMT-NG) designed a questionnaire to survey European transplant centres. This questionnaire investigated several key areas, including guidelines, patient information, donor consent and follow-up services. It was distributed to a sample of delegates (N=150) at the 2005 meeting of the EBMT-NG. Guidelines for the information given to patients were primarily from local (33, 52%), and a combination of local and national (13, 21%) sources. Transplant information was predominantly given to related donors by the recipient's transplant team (36, 57%). A total of 33 (52%) centres indicated that donors were also consented by transplant doctors, whereas 16 (25%) identified that consent was obtained by doctors who were not connected with the transplant team. At present, there is a lack of recognized standardized guidelines for the management of related donors. The development of such guidelines would assist in maintaining patient autonomy, confidentiality and access to accurate and objective information.
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