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Published on: June 20, 2020
The struggle for dignity by people with severe functional disabilities
Barbro Wadensten1, Gerd Ahlström
1Uppsala University, Uppsala, Sweden.
Nursing Ethics
|June 17, 2009
Summary
People with severe functional disabilities use strategies like communication and initiative to maintain dignity. Personal assistants need ethical guidance to empower individuals toward autonomy and participation.
Area of Science:
- Disability Studies
- Sociology
- Nursing
Background:
- Individuals with severe functional disabilities often rely on personal assistance for daily living.
- Achieving autonomy, integrity, influence, and participation are key goals for this population.
Purpose of the Study:
- To investigate the strategies employed by individuals with severe functional disabilities receiving home-based personal assistance.
- To understand how these strategies contribute to autonomy, integrity, influence, and participation.
Main Methods:
- Qualitative interviews were conducted with individuals with severe functional disabilities.
- Data were analyzed using qualitative latent content analysis.
Main Results:
- Six subthemes emerged: maintaining privacy, communication, seeking opportunities, taking initiative, gaining insight, and utilizing temperament.
- The overarching theme identified was 'maintaining dignity in close relationships'.
Conclusions:
- Understanding these strategies is crucial for supporting individuals with severe functional disabilities.
- Nursing education should incorporate ethical knowledge and guidance for personal assistants to foster empowerment.
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