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Pediatric palliative care. State of the art
1Faculty of Medicine, School of Nursing, American University of Beirut, Lebanon. hh35@aub.edu.lb
Insights
Pediatric palliative care (PPC) offers essential support for children with life-threatening conditions, aiming to alleviate suffering and improve quality of life for both the child and their family. This review outlines PPC principles and addresses challenges in its provision.
Area of Science:
- Pediatrics
- Palliative Care
- Medical Ethics
Background:
- Medical advances have reduced child mortality, yet intensive treatments can cause suffering for children with life-threatening conditions.
- Inadequate attention to physical and emotional distress exacerbates suffering for these children and their families.
- There is a need for comprehensive care strategies beyond curative measures.
Purpose of the Study:
- To introduce healthcare providers to the fundamental concepts of pediatric palliative care (PPC).
- To define PPC and elucidate its guiding principles.
- To review the rationale, needs, services, and challenges associated with PPC.
Main Methods:
- This study is a review of existing literature and concepts.
- It synthesizes information on the developmental and epidemiological aspects of childhood death.
- It examines the needs of children and families facing life-threatening conditions.
Main Results:
- PPC focuses on alleviating suffering and enhancing the quality of life for children with serious illnesses.
- Understanding the specific needs of children and their families is crucial for effective PPC.
- Available PPC services face various obstacles and challenges in implementation.
Conclusions:
- Pediatric palliative care is vital for managing suffering in children with life-threatening conditions.
- Addressing the holistic needs of children and families is central to PPC.
- Overcoming challenges is essential for expanding access to and improving PPC services.
Abstract:
Advances in medicine have significantly reduced child mortality worldwide; however those caring for children with life-threatening medical conditions are usually committed to employing curative and life-prolonging treatments until death is at hand. This type of intensive care and attention can expose children and their families to unnecessary suffering, particularly if inadequate attention is paid to the children's physical and emotional distress. This review presents healthcare providers with the basic concepts of pediatric palliative care (PPC) available to assist them in the care of the child with life-threatening medical conditions. It defines PPC and the principles guiding it; it reviews the reasons behind PPC emphasizing developmental and epidemiological aspects of childhood death; it discusses the needs of children with life-threatening conditions and the needs of their families; and it examines PPC services available, and the obstacles and challenges faced in providing PPC.
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